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   Shining a Light on Acrania and Anencephaly

Welcome to the Luca Hill Acrania and Anencephaly Foundation

 

The Luca Hill Acrania and Anencephaly Foundation is dedicated to the families and communities affected by Acrania and Anencephaly. Our mission is to create an environment for families, communities, and medical professionals  to seek accurate information on Acrania and Anencephaly, find a wealth of support, understand the joy and impact of carrying to term, and raise much-needed funding to further Anencephaly and Acrania research.

A little boy who inspired his family, doctors, and the world. 

MEET LUCA

A neural tube defect effecting 1 in 1000 pregnancies

ANENCEPHALY

Care Packages, Support Groups 

LHAAF SUPPORT

Its Here!

5TH ANNUAL 

TIE-DYE BRIGHT LIGHT 5K

AND FUN WALK

The Luca Hill Bright Light 5k and Fun Walk is all about celebrating life, having fun, keeping healthy, and spreading Acrania and Anencephaly Awareness through Luca’s rain of bright light colors!

Team Luca Runners will have the time of their life as they race, dance, cartwheel, flip, whatever makes them over the moon happy...all through Fort Zumwalt Park! When they reach ‘Celebration Check-Points’ a rain fall of tie-dye colors will douse them and brighten their race day shirts!

LHAAF is a proud member of PLIDA

Our Families Come First.

PLIDA stands for the Pregnancy Loss and Infant Death Alliance. PLIDA serves as leaders in perinatal and neonatal bereavement care. We do this through education, advocacy and networking for health care providers and parent advocates. We promote the highest quality of consistent evidence based care for all families.Providing perinatal bereavement care is imperative. It is not an option.

We express our mission through professional continuing education, the establishment of position statements and practice guidelines, unified response to issues in the media or legislation, and by creating a network for professionals to share questions, resources, insight and support.

#LHAAF

#HearUsRoar

#AcraniaAnencephalyAwareness

"The best way to finding better prevention, treatment, and a cure is to make people more AWARE!"

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All donations granted to the LHAAF go directly towards Anencephaly research and our foundation's efforts to create more awareness, support, and education to families and communites that are affected by NTDs.

LHAAF IS A 501C3 FOUNDATION. ALL DONATIONS ARE TAX DEDUCTIBLE TO THE FULL EXTENT OF THE LAW

Luca Hill Acrania and Anencephaly Foundation  LHAAFdn@gmail.com    636-293-4537    126 Hollow Creek Court -St.Peters MO 63376    

 

The Luca Hill Acrania and Anencephaly Foundation strives to provide you with the most current and up to date research, stories, statistics, and overall information in regards to Acrania and Anencephaly. We are not Medical Professionals and we are not qualified to diagnose or treat any conditions.

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