top of page
acrania, anencephaly, anencephaly facts, anencephaly awareness, acrania facts, acrania awareness, anencephaly family support, acrania family support, anencephaly information, acrania information, Duke Research, Anencephaly research, acrania research

   Shining a Light on Acrania and Anencephaly

Welcome to the Luca Hill Acrania and Anencephaly Foundation

 

The Luca Hill Acrania and Anencephaly Foundation is dedicated to the families and communities affected by Acrania and Anencephaly. Our mission is to create an environment for families, communities, and medical professionals  to seek accurate information on Acrania and Anencephaly, find a wealth of support, understand the joy and impact of carrying to term, and raise much-needed funding to further Anencephaly and Acrania research.

A little boy who inspired his family, doctors, and the world. 

MEET LUCA

A neural tube defect effecting 1 in 1000 pregnancies

ANENCEPHALY

Care Packages, Support Groups 

LHAAF SUPPORT

Its Here!

5TH ANNUAL 

TIE-DYE BRIGHT LIGHT 5K

AND FUN WALK

The Luca Hill Bright Light 5k and Fun Walk is all about celebrating life, having fun, keeping healthy, and spreading Acrania and Anencephaly Awareness through Luca’s rain of bright light colors!

Team Luca Runners will have the time of their life as they race, dance, cartwheel, flip, whatever makes them over the moon happy...all through Fort Zumwalt Park! When they reach ‘Celebration Check-Points’ a rain fall of tie-dye colors will douse them and brighten their race day shirts!

LHAAF is a proud member of PLIDA

Our Families Come First.

PLIDA stands for the Pregnancy Loss and Infant Death Alliance. PLIDA serves as leaders in perinatal and neonatal bereavement care. We do this through education, advocacy and networking for health care providers and parent advocates. We promote the highest quality of consistent evidence based care for all families.Providing perinatal bereavement care is imperative. It is not an option.

We express our mission through professional continuing education, the establishment of position statements and practice guidelines, unified response to issues in the media or legislation, and by creating a network for professionals to share questions, resources, insight and support.

#LHAAF

#HearUsRoar

#AcraniaAnencephalyAwareness

bottom of page