Support...
A little word with a lot of love.
As a parent you want to give your child the world. You would do anything to help them achieve their biggest dreams and fulfill all their needs. The moment you find out you are carrying your precious son or daughter you see so much potential in their sweet little life. Then, the devastating day comes when you hear the words of your child’s life limiting diagnosis. Suddenly, all those hopes dash away and a roller coaster of helplessness ensues. What can you do now? How can you help them? How can you fix this? where do you turn?
It doesn't have to be so isolating and dark. We want to be with you every step of the way and be that bright light in your childs diagnosis. Always, keep in mind the beautiful time you have and will have with your child and know that there are teams of inviduals who are with you throughout this entire journey. The Luca Hill Acrania and Anencephaly Foundation Support page has information on...
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support groups specific to Anencephaly and Acrania Parents
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explore options in keeping your child’s life and legacy alive through organ and tissue donation
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participating in the Duke Molecular Physiology Anencephaly Research Study
A Lasting Legacy
Online Anencephaly and Acrania Support Groups
is a private Facebook group for families who have recieved an Acrania or Anencephaly diagnosis and have chosen to carry to term. You must request to be added as a member.
is a private Facebook group for anyone (parents, realitives, friends) who has been affected by Acrania or Anencephaly.
is a private Facebook group specifically for families who have chosen to carry to term after receiving a terminal diagnosis. You must request to be added as a member.
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