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ABOUT US

About The Luca Hill Acrania and Anencephaly Foundation

The Luca Hill Acrania and Anencephaly Foundation was created by the parents of Luca Joseph Hill in honor of their son. Luca was diagnosed with Anencephaly and Acrania in 2014. He lived a life of celebration and graced everyone with his bright beautiful light on February 11, 2015. You can read more about Luca's amazing life and his parents journey with their son by visiting their blog and the Luca Hill page.

 

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Our Mission

The Luca Hill Acrania and Anencephaly Foundation is dedicated to the families and communities affected by Acrania and Anencephaly. Our mission is to create an environment for families, communities, and medical professionals  to seek accurate information on Acrania and Anencephaly, find a wealth of support, understand the joy and impact of carrying to term, and raise much-needed funding to further Anencephaly and Acrania research.

Meet the Team
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Rachel

Hill

President

Kaitlyn
Madden
Vice President of Fundraising
acrania, anencephaly, anencephaly facts, anencephaly awareness, acrania facts, acrania awareness, anencephaly family support, acrania family support, anencephaly information, acrania information, Duke Research, Anencephaly research, acrania research, luca hill, st.peters missouri, st.peters mo,

Caitlyn Perez

Vice President of Family

and Community

Outreach

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Jeff
HILL
Treasurer

 

 

Jake
Madden
Secretary
Desiree
Johnson
Director of Online Support

"The best way to finding better prevention, treatment, and a cure is to make people more AWARE!"

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All donations granted to the LHAAF go directly towards Anencephaly research and our foundation's efforts to create more awareness, support, and education to families and communites that are affected by NTDs.

LHAAF IS A 501C3 FOUNDATION. ALL DONATIONS ARE TAX DEDUCTIBLE TO THE FULL EXTENT OF THE LAW

Luca Hill Acrania and Anencephaly Foundation  LHAAFdn@gmail.com    636-293-4537    126 Hollow Creek Court -St.Peters MO 63376    

 

The Luca Hill Acrania and Anencephaly Foundation strives to provide you with the most current and up to date research, stories, statistics, and overall information in regards to Acrania and Anencephaly. We are not Medical Professionals and we are not qualified to diagnose or treat any conditions.

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